My Amazing lil wonder is really just that..AMAZING!! We have had a whirlwind of things going on in the last 6 weeks and he has handled it all with no more than the occasional meltdown (that we have learned to minimize to less and less).
We had a follow up EEG and sleep study that was supposed to last three days in the hospital but we were out in less than 48. The results were NORMAL and we were told that he is experiencing benign infantile spams. So all the jerky movements at night that sometimes awaken him multiple times is just a thing he will hopefully grow out of and is pretty common in autistic kiddos. The one syncope episode is still unexplained, that will forever be in the back of my mind and even though I try to tell myself that it "just" happened its ok..I still worry about it happening again. Jojo did so well during the testing, he handled it like a champ. He was well taken care of by me and his daddy and the team of nurses and child life experts at the hospital. they had his room all sensory friendly and he LOVED the view. I was thankful we were able to leave early and that everything was ok.
Our therapy routine is so different now but a good different. He is doing his OT sensory/fine motor at a clinic and speech is in home with a therapist. We have our HAB/aba in home and hours are slowly increasing. We are up to five days a week summer schedule. He is adjusting pretty well and making great strides.
